Helpful Websites

Aim at Melanoma: www.aimatmelanoma.org

American Academy of Dermatology: www.aad.org

American Autoimmune Related Diseases Association, Inc.  www.aarda.org

American Contact Dermatitis Society: www.contactderm.org

American Hair Loss Council www.ahlc.org

American Porphyria Foundation www.enterprise.net/apf

American Society of Dermatologic Surgery: www.asds.net

Ataxia-Telangiectasia Children’s Project www.atcp.org

Basal Cell Carcinoma Nevus Syndrome/Gorlin Syndrome (BCCNS Life Support Network): www.bccns.org

Camp Discovery (for young persons with skin disease): www.campdiscovery.org

Childhood Dermatomyositis www.curejm.com

Cicatricial Alopecia Research Foundation: www.carfintl.org

Coalition of Skin Diseases: www.coalitionofskindiseases.org

Cutaneous Lymphoma Foundation: www.clfoundation.org

Dermatitis Herpetiformis www.gluten.net

Dystrophic Epidermolysis Bullosa Research Association: www.debra.org

Ehlers-Danlos Foundation: www.ednf.org

Erythropoietic Protoporphyria Research and Education Fund www.BWH.partners.org/EPPREF

Foundation for Ichthyosis and Related Skin Types: www.scalyskin.org

Genetic Alliance www.geneticalliance.org

Hereditary Hemorrhagic Telangiectasia Foundation International www.hht.org

Histiocytosis Association of America www.histio.org

Incontinentia Pigmenti www.ipif.org

Inflammatory Skin Disease Institute: www.isdionline.org

International Pemphigus Pemphigoid Foundation: www.pemphigus.org

Lupus Foundation of America: www.lupus.org

Medline (peer-reviewed research): www.pubmed.gov

MEDLINEplus Melanoma Home Page: www.nlm.nih.gov/medlineplus/melanoma.html

Melanoma Center: www.melanomacenter.org

Melanoma Research Foundation: www.melanoma.org

National Alopecia Areata Foundation: www.naaf.org

 

 

National Association for Pseudoxanthoma Elasticum www.napxe.org

National Ataxia Foundation www.ataxia.org

National Eczema Association: www.nationaleczema.org

National Cancer Institute Melanoma Home Page: www.cancer.gov/cancertopics/types/melanoma

National Comprehensive Cancer Network Melanoma Treatment Guidlines: www.nccn.org

National Eczema Assocation for Science & Education www.eczema-assn.org

National Foundation for Ectodermal Dysplasias: www.nfed.org

National Lymphedema Network www.lymphnet.org

National Marfan Foundation www.marfan.org

National Neurofibromatosis Foundation: www.nf.org

National Organization for Albinism & Hypopigmentation www.albinism.org

National Organization for Rare Disorders, Inc. www.rarediseases.org

Pemphigus www.pemphigus.org

National Psoriasis Foundation: www.psoriasis.org

National Registry for Ichthyosis and Related Disorders: http://depts.washington.edu/ichreg/ichthyosis.registry/

National Tuberous Sclerosis Assocation, Inc. www.ntsa.org

National Vitiligo Foundation www.vitiligofoundation.org

National Vulvodynia Association www.nva.org

Neurofibromatosis, Inc www.nfinc.org

Nevus Network www.nevusnetwork.org

Nevus Outreach, Inc. www.nevus.org

Oncolink: www.oncolink.com

Pachyonychia Congenita Project: www.pachyonychia.org

Proteus Syndrome Foundation www.proteus-syndrome.org

Scleroderma Research Foundation www.srfcure.org

Sjogren’s Syndrome Foundation www.sjogrens.com

Skin Cancer Foundation: www.skincancer.org

Sturge-Weber Foundation: www.sturge-weber.org

University of Minnesota Department of Dermatology: www.dermatology.umn.edu

Vitiligo Support International: www.vitiligosupport.org

Xeroderma Pigmentosum Society www.xps.org

Aim at Melanoma: www.aimatmelanoma.org

American Academy of Dermatology: www.aad.org

American Autoimmune Related Diseases Association, Inc.  www.aarda.org

American Contact Dermatitis Society: www.contactderm.org

American Hair Loss Council www.ahlc.org

American Porphyria Foundation www.enterprise.net/apf

American Society of Dermatologic Surgery: www.asds.net

Ataxia-Telangiectasia Children’s Project www.atcp.org

Basal Cell Carcinoma Nevus Syndrome/Gorlin Syndrome (BCCNS Life Support Network): www.bccns.org

Camp Discovery (for young persons with skin disease): www.campdiscovery.org

Childhood Dermatomyositis www.curejm.com

Cicatricial Alopecia Research Foundation: www.carfintl.org

Coalition of Skin Diseases: www.coalitionofskindiseases.org

Cutaneous Lymphoma Foundation: www.clfoundation.org

Dermatitis Herpetiformis www.gluten.net

Dystrophic Epidermolysis Bullosa Research Association: www.debra.org

Ehlers-Danlos Foundation: www.ednf.org

Erythropoietic Protoporphyria Research and Education Fund www.BWH.partners.org/EPPREF

Foundation for Ichthyosis and Related Skin Types: www.scalyskin.org

Genetic Alliance www.geneticalliance.org

Hereditary Hemorrhagic Telangiectasia Foundation International www.hht.org

Histiocytosis Association of America www.histio.org

Incontinentia Pigmenti www.ipif.org

Inflammatory Skin Disease Institute: www.isdionline.org

International Pemphigus Pemphigoid Foundation: www.pemphigus.org

Lupus Foundation of America: www.lupus.org

Medline (peer-reviewed research): www.pubmed.gov

MEDLINEplus Melanoma Home Page: www.nlm.nih.gov/medlineplus/melanoma.html

Melanoma Center: www.melanomacenter.org

Melanoma Research Foundation: www.melanoma.org

National Alopecia Areata Foundation: www.naaf.org

National Association for Pseudoxanthoma Elasticum www.napxe.org

National Ataxia Foundation www.ataxia.org

National Eczema Association: www.nationaleczema.org

National Cancer Institute Melanoma Home Page: www.cancer.gov/cancertopics/types/melanoma

National Comprehensive Cancer Network Melanoma Treatment Guidlines: www.nccn.org

National Eczema Assocation for Science & Education www.eczema-assn.org

National Foundation for Ectodermal Dysplasias: www.nfed.org

National Lymphedema Network www.lymphnet.org

National Marfan Foundation www.marfan.org

National Neurofibromatosis Foundation: www.nf.org

National Organization for Albinism & Hypopigmentation www.albinism.org

National Organization for Rare Disorders, Inc. www.rarediseases.org

Pemphigus www.pemphigus.org

National Psoriasis Foundation: www.psoriasis.org

National Registry for Ichthyosis and Related Disorders: http://depts.washington.edu/ichreg/ichthyosis.registry/

National Tuberous Sclerosis Assocation, Inc. www.ntsa.org

National Vitiligo Foundation www.vitiligofoundation.org

National Vulvodynia Association www.nva.org

Neurofibromatosis, Inc www.nfinc.org

Nevus Network www.nevusnetwork.org

Nevus Outreach, Inc. www.nevus.org

Oncolink: www.oncolink.com

Pachyonychia Congenita Project: www.pachyonychia.org

Proteus Syndrome Foundation www.proteus-syndrome.org

Scleroderma Research Foundation www.srfcure.org

Sjogren’s Syndrome Foundation www.sjogrens.com

Skin Cancer Foundation: www.skincancer.org

Sturge-Weber Foundation: www.sturge-weber.org

University of Minnesota Department of Dermatology: www.dermatology.umn.edu

Vitiligo Support International: www.vitiligosupport.org

Xeroderma Pigmentosum Society www.xps.org

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